Books and Websites
Books and websites for Patients and Professionals
Below is a list of books that we encourage you to read:
Secret Suffering: How Women’s Sexual and Pelvic Pain Affects Their Relationships by Susan Bilheimer and Dr. Robert J. Echenberg
Healing Painful Sex: A Woman’s Guide to Confronting, Diagnosing, and Treating Sexual Pain
by Deborah Coady, MD and Nancy Fish, MSW, MPH
Ending Female Pain: A Woman’s Manual – The Ultimate Self-Help Guide for Women Suffering from Chronic Pelvic and Sexual Pain
by Isa Herrera, MSPT, CSCS
Heal Pelvic Pain: The Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence,& I.B.S, and Other Symptoms Without Surgery by Amy Stein, MPT
Medical Tips From the Inside: Things You Need to Know by Patricia Raya and Corine A. Mogenis
Finding a Joyful Life in the Heart of Pain by Darlene Cohen
Pain Free for Women – The Revolutionary Program for Ending Chronic Pain by Pete Egoscue with Roger Gittines
The Trigger Point Therapy Workbook – Your Self-Treatment Guide for Pain Relief by Clair Davies, NCTMB and Amber Davies, NCTMB
The Camera My Mother Gave Me by Susanna Kaysen
Fitness for the Pelvic Floor by Beate Carriere, P.T.
Autogenic Training – A Mind-Body Approach to the Treatment of Fibromyalgia and Chronic Pain Syndrome by Micah R. Sadigh, Ph.D.
Suffering is Optional – Three Keys to Freedom and Joy by Cheri Huber and June Shiver
Pelvic Pain and Low Back Pain – A Handbook for Self Care and Treatment by Janet Hulme, M.A., P.T.
The Interstitial Cystitis Survival Guide by Robert M. Moldwin, M.D., FACS
Interstitial Cystitis and Pain – Taking Control – A Handbook for People with IC and Their Caregivers Published by the Interstitial Cystitis Association
The Balance Within – The Science Connecting Health and Emotions by Esther M. Sternberg, M.D.
Full Catastrophe Living – Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness by Jon Kabat-Zinn, Ph.D.
The Anatomy of Hope – How People Prevail in the Face of Illness by Jerome Groopman, MD
Women and Autoimmune Disease – The Mysterious Ways Your Body Betrays Itself by Robert G. Lahita, MD, PhD
Anti-Inflammatory foods for Health: Hundreds of Ways to Incorporate Omega-3 Rich Foods into Your Diet to Fight Arthritis, Cancer, Heart Disease, and More by Barbara Rowe, MPH, RD, LD, CNSD and Lisa Davis, PhD, PA-C, CNS, LDN
Recipes for IBS (Irritable Bowel Syndrome) – Great-Tasting Recipes and Tips Customized for Your Symptoms by Ashley Koff, RD
Trigger Point Therapy for Myofascial Pain – The Practice of Informed Touch by Donna Finando, LAc, LMT and Steven Finando, PhD, Lac
Books for Healthcare Professionals
The following books are geared toward the medical professional for the treatment and understanding of chronic pelvic/sexual pain. These are the best of the key works that address the full spectrum of understanding and managing chronic pelvic/sexual pain.
Female Sexual Pain Disorders by Dr. Andrew Goldstein
The Pelvic Floor by Beate Carrière, P.T. and Cynthia Markel Feldt, P.T.
Pelvic Pain: Diagnosis and Management by Fred M. Howard, M.S., M.D. with C. Paul Perry, M.D., FACOG, James E. Carter, M.D., Ph.D., FACOG, Ahmed M. El-Minawi, M.D., M.S.C., Ph.D., Rong-Zeng Lie, M.D., MAMS, CMI
Chronic Pelvic Pain: An Integrated Approach by John F. Steege, M.D., Deborah A. Metzger, Ph.D., M.D., Barbara S. Levy, M.D.
Cognitive Therapy for Chronic Pain: A Step-by-Step Guide by Beverly E. Thorn
Clinical Obstetrics and Gynecology, December 2003, Volume 46, Number 4 byhttp://www.clinicalobgyn.com
Overlapping Conditions Organization: http://www.overlappingconditions.org/
The following independent non-profit advocacy groups comprise the Overlapping Conditions Alliance: the Endometriosis Association, TMJ Association, National Vulvodynia Association, and the Chronic Fatigue and Immune Dysfunction Association. There are well over a dozen overlapping conditions and these particular organizations have partnered to educate the public.
International Pelvic Pain Society: http://www.pelvicpain.org/
OBGYN.net’s Pelvic Pain page: http://www.obgyn.net/pelvic-pain/
Persistent Genital Arousal Disorder
General Pain Sites
Highly recommended sites:
Neuro-Orthopedic Institute of Australia
Understanding Chronic Pain in 5 Minutes: Click here
American Pain Foundation: http://www.painfoundation.org/
American Pain Society: http://www.ampainsoc.org/
Interstitial Cystitis Network: http://www.ic-network.com/ – good for products sold – (try to stay off of “blogs” – depressing)
Interstitial Cystitis Association: http://www.ichelp.org/ – best educational site for average IC sufferer
International Painful Bladder Association: http://www.painful-bladder.org/
Tali Krull is an IC activist and patient who has two pelvic and sexual pain support groups for both women and men:
Living with IC – Facebook support group
Living with IC – MySpace support group
Irritable Bowel Syndrome: http://www.aboutibs.org/
Pudendal Hope: http://www.pudendalhope.info/
AASECT – American Association of Sex Educators, Counselors and Therapists:http://www.aasect.org/
National Institute of Health – National Library of Medicine:www.nlm.nih.gov/medlineplus/femalesexualdysfunction.html
Dr. Laura Berman – Expert resource for sex and intimacy at any age:http://www.drlauraberman.com/
Dr. Jennifer Berman – Vibrance network and questions about sexuality answered: http://www.bermansexualhealth.com/
Institute for Sexual Medicine – Boston University School of Medicine:www.bumc.bu.edu/sexualmedicine
Feminist.com: Health & Sexuality links
Vulvodynia.com – http://www.vulvodynia.com/
National Vulvodynia Association: http://www.nva.org/